Tuesday, January 11, 2011

No matter what

My little guy may have one of these

and one of these

and happens to be missing part of one of these.

But he still has ten tiny

a perfect little

such sweet

and is as precious as can be and I love him to pieces no matter what.

I've been reflecting lately on a response I often get when people hear about Parker. They say, "I'm so sorry for you".  One of our NICU Doctor's shared an excerpt from the book, "You Will Dream New Dreams" in which Sandra Assimotos-McElwee (who has a child that has Down's syndrome) says the following, 

"Please do not apologize; we aren't sorry.....He sleeps, eats, cries, and dirties diapers--like every other baby.  He's just got an extra chromosome."

In our case, Parker doesn't have an extra chromosome but a missing part of his chromosome but the idea is still the same.  I don't want people to pity me or feel sorry for me.  You see, I feel blessed to have Parker in my life, I wish the best for him and I want to be the best Mom I can be for him.  This would be the same no matter what his abilities or disabilities are and I want to never lose sight of this.  So there's no need to be sorry.  Parker was made the way he was for a reason and I will always and forever love him for just who he is. 

1 comment:

  1. This is mainly in response to people apologizing that Parker is the way he is and not completely healthy. When people say "I'm sorry you had to stay in the hospital for so long" or "sorry you got test results that you didn't want" - this is comforting and helpful. When the "sorry" is meant as "sorry your child isn't perfect" this is when I don't want people to feel this way. He is exactly how he was made to be and I love him just the same. Hope that makes sense.