When we first found out that Parker had a genetic disorder called a "deletion" all I could do was try and educate myself about what that meant. I searched all over the web for helpful information. Disorders like these are very rare so there isn't a lot of information available. However, there is a support group called UNIQUE based in the United Kingdom that has been tremendously helpful and their website has all sorts of information that is useful. For more information about chromosome disorders in general click here.
Parker's exact deletion is 6q12-16.1. The closest information available is a leaflet put out by UNIQUE that discusses deletions from 6q11-16. If interested, click here.