He started to perk up a bit this evening but he's still really tired. I hate seeing my little guy this way but I am so happy at all the progress he has made and I'm hopeful we can wean him off the CPAP tomorrow.
Both sets of grandparents and Alexa came to visit Parker tonight. Parker was still pretty out of it but he did give Alexa a big smile when she sang Twinkle Twinkle Little Star and Baa Baa Black Sheep to him. Seeing that meant so much to me. I've got the two best kids in the world I think.
We found out tonight that there are two bugs involved in Parker's illness. Both of which would be fairly easy for Parker to get because of his compromised status and his trach. The main diagnosis so far is tracheitis and pneumonia. They're just trying to decided if continuing the IV medications for 6-10 more days is necessary or not or if there is an alternative. It's a tough call to make because leaving him on these high power medications if he really doesn't need them can have unpleasant outcomes but not leaving him on long enough could cause the illness to get worse or cause other problems. So...we're leaving that up to the Doctor's to decide.
So for now we're just playing the wait and see game and trying not to go to crazy in the meantime. Thanks for the prayers and hopefully I'll be writing my next post from home.